My Journey with Trigeminal Neuralgia
Welcome to my story. This page is dedicated to sharing my experiences with trigeminal neuralgia (TN), connecting with fellow sufferers and caregivers, and offering hope and encouragement. I'm not a medical professional, but I am someone who understands the daily challenges of living with TN. Join me as I share my journey, the good, the bad, and everything in between.
Finding Purpose in the Pain
It has been a dream of mine for years to get my voice and blog online to help others who were looking for answers and support to this horrific disease. Despite not being tech-savvy, I have been determined to create this blog. I started several times under different names but couldn't complete the setup. My goal is to create a place where those suffering from TN and their caregivers can find hope, hear my story, and connect with others seeking answers. I aim to be an encouragement and offer honest insights based on my personal experiences. It can also be a place to direct your loved ones, friends, and coworkers to when they clearly are not able to relate to the type of pain you are talking about. If it's not fatal, then Why can't you get better? A question I have been asked many times. Hopefully my journey and experiences can help to make you feel heard, understood, and even find quicker results.
The search for answers and support
Like many of you, when I received my TN diagnosis, I immediately turned to the internet for answers. I was diagnosed over 15 years ago. One of the first things I read was the term "The Suicide Disease." After 28 doctors, the diagnosis was a relief, validating the unbearable pain I was experiencing. The nickname also came with fear that maybe I would NOT be ok! I longed to find someone sharing their story. Fifteen years later, there's much more information available which gives me hope that a cure is coming soon. For now I still hope to provide a personal perspective on how TN drastically changed my life and the importance of support.
Sharing the darkest times
One of my primary forms of therapy has been journaling. Although TN makes it hard to write sometimes, I want to go back and share some of those darkest times from my early journals. My goal is to help you know me better and understand that I can relate to your worst times. Join me as we share this journey together, lift each other up, and help others understand how serious TN is and how they can provide the greatest support.
"I want my readers to know that I have been at the lowest and scariest points in my journey with TN. I have walked through seasons where I have actually begged God to just let me die because it is too unbearable."
- A Pain in My Face
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